Dr. Almaz Sharman Chair of the Board of Trustees, Bulat Utemuratov Foundation
Dr. Jacob Vorstman, MD, Child & Adolescent Psychiatrist Associate professor Hospital for Sick Children Toronto, Canada
November 7-8, 2017
The Ritz-Carlton Hotel, Astana
The second international conference "Autism. The World of Opportunities" of Bulat Utemuratov's Foundation is an opportunity to improve knowledge on autism spectrum disorders (ASD).
The conference is intended for a wide range of researchers and decision-makers, practitioners - teachers and educators, clinical specialists, medical professionals, parents and representatives of children with autism spectrum disorders (ASD). In October 2016, the Foundation successfully held the First International Conference "Autism. The world of Opportunities", the main purpose of which was the exchange of information on world trends, problems and opportunities, innovations and effective models of cooperation between researchers, educators, clinicians and families.
In the framework of the Second International Conference, the emphasis will be made on innovative approaches, methodologies and practical diagnostic tools and interventions, as well as on the latest researches and methods for ASD correction.
The list of speakers consists of the world-famous researchers, creators of methods and institutions and includes Dr. William Partington's Behavior Analysts (USA), A.J. Drexel Autism Institute (USA), Center for Autism Research & Treatment at the University of California (USA), Medical School of Oregon (USA), Marcus Autism Center (USA), Kasari Laboratory at the University of California, Federal Resource Center for Complex Support of Children with ASD of the Moscow State Psychological and Pedagogical University (Russia) and many others.
Dr. Almaz Sharman Chair of the Board of Trustees, Bulat Utemuratov Foundation
Dr. Jacob Vorstman, MD, Child & Adolescent Psychiatrist Associate professor Hospital for Sick Children Toronto, Canada
Dr. Chee Kai Chan Co-Director Genetics at the Department of Biomedical Sciences, Nazarbayev University School of Medicine, Kazakhstan
Dr. Valerie Volkert, BCBA-D, “Partington Behavior Analysts” Founder, USA
Jonathan Panganiban, Doctoral Student, Kasari Lab, UCLA, USA
Dr. James W. Partington, BCBA-D, “Partington Behavior Analysts” Founder, USA
Seth Clark, BCBA, Behavioral Clinical Practitioner, Marcus Autism Cen-ter, USA
ASD identification, diagnostics and description: adequate methods choice and their interpretation (зал Ballroom III+IV)
Dr. Diana L. Robins, Professor and Leader of the Research Program in Early Detection and Intervention, AJ Drexel Autism Institute, USA
Appraisal of Effective Interven-tions for Pediatric Feeding Dis-orders (зал Ballroom I+II)
Dr. Valerie Volkert, Researcher and clinician, Marcus Autism Center, USA
Effective methods of diagnosis – ADOS 2 (зал Ballroom I+II)
Aleksander Sorokin Principal researcher at the newly-founded Federal Resource Center for ASD at the Moscow State University of Psychology and Education, Russian Federation
Using ABA (Applied Behavior Analysis) to establish basic learner repertoire and commu-nication skills (зал Ballroom I+II)
Dr. Andresa De Souza, Ph.D., BCBA-D, Postdoctoral Fellow at Marcus Autism Center, USA
Karlygash Zhagiparova Head of the “Asyl Miras” autism center in Astana, Kazakhstan
Anara Asanalieva Head of the Program on Applied Behavior Analysis, "Hand in hand" Center, Kyrgyzstan
Dr. Almaz Sharman, Chair of the Board of Trustees, Bulat Utemuratov Foundation
MD, Child & Adolescent Psychiatrist Associate professor Hospital for Sick Children Toronto, CanadaRead more
Principal researcher at the newly-founded Federal Resource Center for ASD at the Moscow State University of Psychology and Education, Russian FederationRead more
Professor and Leader of the Research Program in Early Detection and Intervention, AJ Drexel Autism Institute, USARead more
Co-Director Genetics at the Department of Biomedical Sciences, Nazarbayev University School of Medicine, KazakhstanRead more
Materials of the conference will be put on the Foundation Youtube channel: https://www.youtube.com/watch?v=dMU3fy0NjfA&feature=youtu.be
And also on the Foundation webpage: facebook.com/AutismAsylMiras/
Dr. Vorstman trained in both child and adolescent psychiatry (clinic and research) and molecular genetics (research). Starting in 2001, his research focused on the psychiatric and genetic aspects of the 22q11.2 deletions. Between 2004 and 2006 and between April 2016 and June 2017 he worked in the Children’s Hospital of Philadelphia, United States of America.
Dr. Vorstman is an executive board member in an international consortium for the study of the behavioral phenotype in the 22q11.2 deletion syndrome, encompassing 22 research sites and funded by the NIMH ($12M). The analysis of consortium longitudinal IQ data in relation to the risk of psychosis was recently published in JAMA Psychiatry. Gradually he has broadened the scope from 22q11DS to the study of genotype-phenotype relations in autism and schizophrenia. His ambition is to further insights into the genetic architecture underlying these disorders as well as to improve methods to measure the associated phenotypes. Regarding the latter, Dr. Vorstman developed a smartphone application, in equal partnership with Dr. Kas, which allows 24/7 objective registration of social and communicative behaviors of individuals. This application has received considerable funding (in particular as part of a large European IMI grant (€16,5M)) and is at present implemented in several ongoing studies generating the first data of this kind. Following his PhD in 2008 he has worked as an assistant professor and PI at the Brain Center Rudolf Magnus, UMC Utrecht where he supervised four PhD students towards a successful defense of their thesis and continues to supervise several ongoing trajectories in an adjunct appointment. As of September 2017 Dr. Vorstman is appointed as an associate professor at the Hospital for Sick Children in Toronto, Canada and Scientist at the SickKids Research Institute.
Valerie M. Volkert, Assistant Professor (Pediatrics) at Emory University School of Medicine, is a psychologist program manager in the Pediatric Feeding Disorders Program at the Marcus Autism Center. She received her doctorate in school psychology from Louisiana State University in 2007. She was previously faculty at the Munroe-Meyer Institute, and adjunct faculty at the University of Nebraska at Omaha, where she became the Training Director for the Applied Behavior Analysis Ph.D. Program and Center for Autism Spectrum Disorders. In 2015, Dr. Volkert joined the Marcus Autism Center. She sees patients in outpatient clinics and the intensive-day treatment program in the Feeding program, supervises interns and residents, and pursues lines of clinical research. Of particular interest are treatments to increase advanced feeding skills (e.g., self-feeding and chewing). She has authored three book chapters and published 30 peer-reviewed research studies in multiple journals, including the Journal of Applied Behavior Analysis, the Journal of Disability and Rehabilitation, Research in Developmental Disabilities, Behavior Modification, Behavior Analysis in Practice, and the Journal of Pediatrics. Dr. Volkert served as the Editorial Assistant for the Journal of Applied Behavior Analysis from 2008 to 2010. She also serves on the board of editors for two journals and as a guest associate editor for the Journal of Applied Behavior Analysis. She is currently the President Elect for the Georgia Association for Behavior Analysis.
Alexander Sorokin’s research deals with neurobiological and psychological testing of children with developmental disorders, primarily autism spectrum disorders (ASD). For more than 20 years he has been participating in the projects of the neurophysiology lab at the National Mental Health Research Center, which included the electrophysiological investigation of Rett Syndrome, fragile X Syndrome, and autism. He received his PhD in human physiology from the Lomonosov Moscow State University in 1999 with the thesis on neurophysiology of ADHD. Dr.Sorokin translated several diagnostic instruments into Russian, including the “golden standard” methods of autism diagnostic: ADOS-2 and ADI-R. He authored several curricula for higher education and professional development. The topic of his major publications is electroencephalography in child psychiatry. He also published in the field of speech perception, visual processing, and oxidative stress in autism. Recently he became a principal researcher at the newly-founded Federal Resource Center for ASD at the Moscow State University of Psychology and Education.
James W. Partington, PhD, BCBA-D is the director of Behavior Analysts, Inc., and provides services to children and their families. He is a licensed psychologist and has 40 years of experience working with children with developmental disabilities. He is internationally recognized as a leader in the field of behavior analysis with expertise in language-based interventions. He is known for his work in teaching parents and professionals about practical, evidence-based procedures necessary for effective educational interventions. He has been a faculty member of several universities including West Virginia University, University of San Francisco and St. Mary's College. Dr. Partington is a former President of the Northern California Association for Behavior Analysis and has served as a member of the Behavior Analyst Certification Board. He is the author of The Assessment of Language and Learning Skills-Revised (The ABLLS-R®) and Capturing the Motivation of Children with Autism and has also produced several instructional videos related to effective treatment for children with autism.
Diana L. Robins, Ph.D. is a professor at the AJ Drexel Autism Institute, where she leads the Research Program Area in Early Detection and Intervention for ASD. She also holds secondary appointments in Community Health and Prevention in the Dornsife School of Public Health and Psychology in the College of Arts and Sciences at Drexel University. Much of her work has centered around developing, validating, and refining a widely-used screening tool for ASD, the Modified Checklist for Autism in Toddlers, or M-CHAT. The original M-CHAT paper has been cited more than 1400 times, and the validation of the recent revision, M-CHAT-R with Follow-Up (M-CHAT-R/F), demonstrated that the 2-stage screening questionnaire detects many cases of autism, and children in the study were diagnosed about two years younger than the national median, which improves access to ASD-specific early intervention. Dr. Robins’ other research endeavors examine social cognition and social communication in individuals with ASD.
Dr. Robins’ research has been funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, Autism Speaks, and the National Institute of Mental Health. Her work has been published in leading pediatric and autism journals. She currently serves on the editorial boards of the Journal of Autism and Developmental Disorders and Autism: The International Journal of Science and Practice, and is the treasurer of the International Society for Autism Research.
Dr. Robins received her doctorate in Clinical Psychology, with an emphasis in Clinical Neuropsychology from the University of Connecticut. Following her APA-approved internship at the University of Florida Health Sciences Center, Dr. Robins completed a 2-year postdoctoral fellowship at the Yale University School of Medicine Child Study Center. She then spent 10 years on the faculty at Georgia State University, with a joint appointment in the Department of Psychology and the Neuroscience Institute, before moving to Drexel University in 2014.
Andresa De Souza is a Post-Doctoral Fellow at the Language and Learning Clinic at Marcus Autism Center and Emory University. She received a Bachelor’s in Psychology from State University of Londrina in Brazil, a Master’s in Behavior Analysis and Therapy from Southern Illinois University Carbondale under the supervision of Dr. Ruth Anne Rehfeldt, and a Ph.D. in Applied Behavior Analysis from the University of Nebraska Medical Center under the supervision of Dr. Wayne Fisher. During the course of her doctoral studies, Dr. De Souza gained valuable experience in early-intervention applications for children with autism, the assessment and treatment of severe problem behavior, and autism diagnosis. She has also provided remote supervision and worked as an international consultant. Currently, she specializes in early intervention for children with autism. Dr. De Souza is a board certified behavior analyst at the doctoral level (BCBA-D) and has served as a guest reviewer for the Journal of Applied Behavior Analysis.
Seth Clark received his B.A. in psychology from Southern Illinois University and later his M.A. in Applied Behavior Analysis from University of Maryland-Baltimore County. While receiving his master’s degree, he spent 2 years working at the Kennedy Krieger Institute, Neurobehavioral In-Patient Program designed to evaluate and treat severe problem behaviors.
Mr. Clark currently serves as a Behavioral Clinical Practitioner in the Severe Behavior Department at the Marcus Autism Center. He has 10+ years of experience working with individuals with intellectual disabilities who engage in high intensity aggressive, disruptive, and self-injurious behaviors and is currently a Board Certified Behavior Analyst.
Mr. Clark’s current research focuses on the assessment and treatment of severe maladaptive behavior, primarily in children with autism. Furthermore, Mr. Clark has a large interest in developing safe and effective strategies to train staff and caregivers on a variety of protective and crisis management procedures. He is the co-creator and current supervisor of the Marcus Crisis Prevention Program (MCPP), a program that focuses on how to teach individuals to safely manage children and adolescents when they become aggressive or destructive.
Assistant Professor and Director on Genetics at the Faculty of Biomedical Sciences of the Medical University named after Nazarbayev, Kazakhstan Dr. Chan's researches in the field of autism in Kazakhstan are focused on nutrigenomics - the interaction between nutrition and human genes and its influence on various aspects of ASD clinical signs in children. Dr. Chee Kai Chan gained a bachelor's degree in natural science and a master's degree in pedagogy in the National University of Singapore. He gained his Philosophy Doctor Degree in the John Curtin School of Medical Research of the Australian National University (1995-2000). He carried out researches in the field of nuclear transportation and use of radically new nuclear localization signal sequences to improve gene delivery. He worked under A*STAR doctoral student's scholarship at Johns Hopkins University School of Medicine in Baltimore. He returned to Singapore to become assistant professor at Nanyang Technological University at the National Institute of Pedagogy. Subsequently, he moved to a position of a lecturer at the Faculty of Genetics at La Trobe University in Melbourne, Australia (2003-2004). In 2007 he was awarded by the Department of Science and Technology for his contribution to teaching and learning. He also worked extensively from 2008 to 2014 in the position of the Director of Genetics at Fitgenes Pty Ltd located in Australia, where he is still working as a consultant in the Scientific Advisory Committee.
Jonathan Panganiban is a doctoral candidate at the UCLA Graduate School of Education, working under the mentorship of Dr. Connie Kasari. His experience in the field of autism spectrum disorder spans over a decade working as an interventionist and researcher. Trained in both discrete trial training and the social communication intervention known as JASPER, Jonathan’s research and clinical interests have led him to train parents, teachers, and professionals on autism intervention strategies. His research interests also include predicting optimal language outcomes for children with autism and adapting autism interventions for community and school settings. More recently, Jonathan has been involved in a collaboration between the Asyl Miras Foundation and the UCLA Kasari Lab in efforts to bring JASPER to autism centers throughout Kazakhstan.
Karlygash Shalkarovna is a hight level teacher-speech pathologist, who graduated from the Kazakh State University named after Abay, speech pathology faculty.
Experience of working with children with mental disabilities is 25 years. She had been a Deputy Director for Curriculum and Discipline in a special correctional school in Astana for 10 years.
From 2010 to 2014 being the part of the National Scientific and Practical Center for Correctional Pedagogy she headed the creative group of teachers in the experimental work named "Scientific and methodological support of teaching schoolchildren and adolescents with disabilities within the framework of special education", and participated in the development of methodological materials.
Since September 2015, she had been the head of the Autism Center Rehabilitation Service and is currently the head of the Asyl Miras Autism Center in Astana.
Anara Asanalieva, mother of the 10 years old child with autism, psychologist, supervisor for the ABA therapy at the Center Hand in Hand at the Association of Parents of Children with Autism in Kyrgyzstan. Finished Behavior Analysis Certificate Program, BCBA level, in June 2017 at the Clemson University, Youth Learning Institute Center for Behavior Analysis, and is taking Practical supervised hours of Applied Behavior Analysis, since February 2017, supervisor Umut Catron, BCBA, USA.
Anara Asanalieva provides services to children with autism and their families since 2012. Trainer in Applied Behavior Analysis at Association, developed ABA 260 hours theoretical and practical parent training “Family and Child”, developing vocational and functional program for teenagers “Independence: Step by Step”. She worked as an assistant of Clinical Director at the Bishkek Center for Applied Behavior Analysis, teaching and supervising ABA specialist, and training parents. Expert in the working groups at the UNICEF at the Early Intervention, Home Visiting programs and development of the Clinical Protocol for Autism Spectrum Disorders at the Ministry of Health of Kyrgyzstan. Member and one of the initiators of the establishment of Association of Parents of Children with Autism “Hand in Hand”, active participator in all Hand in Hand activities related to advocacy and spreading awareness.
Dr. Almaz Sharman is an American medical scientist of Kazakh origin with 30 years of experience in biomedical and medico-demographic researches, international healthcare and hospital management. His developed methodology for studying the HIV infection prevalence using national representative sampling allowed the UNO revising the pandemic scale, reducing the estimated number of HIV-infected people in the world by 7 million. Under his supervision, a number of countries studied the prevalence of anemia among women and children, which formed the basis for the development of the successful national programs to combat anemia and the reproductive health programs. As a member of the American Health Association, Dr. Almaz Sharman worked for Johns Hopkins University, and in Kazakhstan he headed the National Medical Holding and worked as one of the heads of the Nazarbayev University, where he laid the foundation for the integrated academic health system of the University. Currently, Dr. Almaz Sharman is a president of the Academy of Preventive Medicine of Kazakhstan and co-founder of HealthCity network of clinics. Dr. Sharman created a web portal www.zdrav.kz — Kazakhstan information resource devoted to healthy behaviour, quality of life and longevity. He also developed a technology product www.symptomaster.com - an innovative product of "smart medicine", consisting of more than 100 algorithms, representing a consistent logical solutions for interpreting the symptoms of many diseases and making informed decisions on further diagnosis and treatment by patients. He also developed a resource www.medmir.org aimed at increasing the capabilities on differential diagnosis of diseases using artificial intelligence technology.
M.T. Aitmagambetov has a degree of candidate of medical sciences, graduated from the second Moscow Medical Institute named after N.I. Pirogov (now the Russian State Medical University) in the speciality Medical Biophysics. He also prepared and defended his Candidate's thesis. He was engaged in scientific work on the basis of the Republican Center for Maternal and Child Health Protection of the Ministry of Health of the Republic of Kazakhstan, Almaty. Since 1995 he has been working in international projects related to the implementation and introduction of social initiatives in the Central Asian region, development of civil society, and formation of the leadership potential of non-profit sector. In 2006, he worked in Afghanistan as the Director for Training and Organizational Development of the international project related to strengthening the potential of local non-profit organizations. From 2007 to 2011, he headed the Yerzhan Tatishev's Foundation. Since 2014 he has been working as the director of Bulat Utemuratov's Foundation.